I contacted you in 2002 when my daughter was 4, and seizures started out of nowhere and we couldn't get them to stop - she had 4 seizures with fever between age 14 months to 3.5 years. Then at age 4.5 years she had a 7 minute seizure without a fever. Eight weeks later she had multiple daily seizures. Nine months later we were on our third med, and she was only continuing to escalate every 5-10 days without seizure control.
You told me that if she was chemically sensitive then the drugs the doctors were recommending may make her worse. So I put her on both the failsafe and ketogenic diet, and her seizures stopped! Thank God!! And thank you!!! Well, she was on the ketogenic diet for 4 years, and near the end the dietician wanted me to put her on carnitine, I emailed you and Howard said it was an amine and so I didn't use it. (It took the dietician years to admit it was the right decision – though she has been an amazing support in helping to create ketogenic failsafe meals!) Three months later we were able to successfully wean our daughter off the ketogenic diet, and she has remained seizure FREE!
She is now tolerating sals but still failsafe re: additives and amines. She gets twitches and jerks at night when she has amines, to varying degrees and in direct proportion to the amount of amines ingested.
Thank you a thousand times over and over again, failsafe eating was key to saving her life! (She was so ill that she had lost her reflexes—if she tripped, her hands didn't even come up to protect herself). She is now almost 14 and thriving!!!!!) – by email, Canada