Failsafe 90 October - December 2018

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The Food Intolerance Network provides information and support for people worldwide using a low-chemical elimination diet free of additives, low in salicylates, amines and flavour enhancers (FAILSAFE) for health, behaviour and learning problems.

Focus:

Have you seen these blogs since the last Failsafe newsletter?

My week of amazingly positive feedback
Aspirin, dietary salicylates and Nurofen side-effects
Does the RPAH elimination diet increase sensitivity to foods?
Dealing with the grandparents, in-laws, hubbies
Brain retraining for fragrance sensitivity and MCS – three failsafers report
Chemical sensitivity increasing: study
Why avoid bread preservatives?
Warning: ‘fermented wheat flour’ and ‘fermented wheat’ – unsafe for coeliacs (so far) OR unsafe for failsafers?
Bread preservative makes rats appear autistic
Additives in meat linked to mania and bipolar disorder: it’s official
Do you know the difference? - sulphites or sulphates, SLS or SLES
Asthma drugs linked to depression and suicide in children - is diet an option?

Now targeting: If you want things to change, contact the food manufacturer!

Research: Soy reviewed by Harvard School of Public Health; Foods are natural sources of substances that may exert crucial effects on the nervous system in humans

In brief: Marion Nestle’s new book “Unsavoury truth: how food companies skew the science of what we eat”

Your questions: I have recently been using Miso paste in my casseroles occasionally. The package states ingredients: water, soybeans, rice, salt, alcohol. Is the Miso powder safe?

Success stories: [1494] – [1506]

Failsafe shopping list: Feedback on LYS (liberate your skin) moisturiser

Factsheets: over 100 science-based information sheets on symptoms and additives plus video resources

Support community: Failsafers talking to each other. UK facebook group https://www.facebook.com/groups/380347182034474/ again accessible.

Cook's corner: access to thousands of delicious recipes

Thanks and admin:

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The latest newsletter is now available, with some outstanding reader stories. My favourites:

“I went my entire life thinking I had no food issues … I ate what my son ate and wow I learned a lot about myself …” from story [1506]
 
“After starting my diet, the first miracle was being able to sleep again … I wouldn't even consider trading my newfound health for these high-chemical foods” from story [1505]
 
“My first son was like an eczema-covered cyclone … I have Dengated kids that come into my house and avoid additives like the plague …” from story [1497]

Looking for a Christmas gift for a failsafer? See the reader feedback on the new LYS (liberate your skin) moisturiser – basically, more expensive but works better than sorbolene. And don't forget our factsheet on Christmas and food intolerance.

This year, consider giving the gift of family peace with these great discounts (until New Year's Day):

Fed Up and the Failsafe Cookbook by Sue Dengate 10% off (use code FU10)
DVD Fed Up with Children's Behaviour 30% off! (use code DVD30)
The Set (both books and the DVD) 20% off (use code TS20)
Wein Air Supply 10% off (use code wein10)

As always, thanks to everyone for support and sharing so freely given in the Food Intolerance Network, which currently has 14,584 members, including some very welcome RPAH-trained dietitians.

 - Sue Dengate
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Have you seen these blogs since the last Failsafe newsletter?

My week of amazingly positive feedback

Howard and I would like to say a very special thank you to all failsafers who give us such positive feedback. We greatly enjoy hearing about this and it helps us to continue with our work. Read all this inspiring blog

Aspirin, dietary salicylates and Nurofen side-effects

A new study finds daily aspirin doesn’t prevent cardiovascular disease, and that side effects of aspirin can include serious bleeding such as stroke. Failsafers say problems with aspirin suggests problems with dietary salicylates. Read blog

Does the RPAH elimination diet increase sensitivity to foods?

Authoritative advice from Dr Elizabeth Pickford, Paediatric Allergist who worked 20 years at RPAH and now works privately www.paediatrix.com.au and at Macquarie University Centre for Paediatrics. Read blog

Dealing with the grandparents, in-laws, hubbies

Most failsafers face problems with difficult relatives at some stage, so we were impressed by these supportive answers that were offered on the facebook group. Read threads and a factsheet with great advice and support threads and a factsheet with great advice and support

Brain retraining for fragrance sensitivity and MCS – three failsafers report

Three failsafers with fragrance and chemical sensitivity reported success with brain retraining programs for MCS and other symptoms. What is the process and where is the evidence? - read more

Chemical sensitivity increasing: study

In Australia, nearly 20% of the population report chemical sensitivity and 6.5% have medically-diagnosed multiple chemical sensitivity (MCS) according to recent research from Professor Anne Steinemann at Melbourne University. In other words, MCS affects an estimated 1 million adult Australians, with chemical sensitivity affecting another 2 million. Read blog

Why avoid bread preservatives?

Some people are affected by the bread preservative and some are not. But the trouble is, if you are affected, you are probably eating it – unknowingly - in a healthy product many times a day every day, so there is no chance to see how much better you could feel. Even worse, the bread preservative is difficult to avoid now because it is widely used and can be hidden as some innocent-sounding ingredient. See the many symptoms that can be caused by bread preservatives

Warning: ‘fermented wheat flour’ and ‘fermented wheat’ – unsafe for coeliacs (so far) OR unsafe for failsafers?

The words “fermented wheat” on a label could soon refer to two completely different products – first as a possible coeliac-safe wheat flour, and second as a hidden preservative in bread. See more information

Bread preservative makes rats appear autistic

Autistic spectrum disorders seem to be increasing and propionate-based preservatives can make rats appear autistic. Researchers think propionates could exacerbate autistic symptoms in children. Read the blog and watch 3 minute movie

Additives in meat linked to mania and bipolar disorder: it’s official

We’ve been saying it for 25 years. Now researchers from Johns Hopkins University in the US have found out for themselves: common additives in processed meats such as ham, bacon, salami, chorizo and hot dogs can cause symptoms of mental illness. See details and references in blog

Do you know the difference? - sulphites or sulphates, SLS or SLES

There are 4 classes of these chemicals that failsafers find confusing  – 2 groups of food chemicals and 2 groups of chemicals used in toiletries. Learn to distinguish and avoid them

Asthma drugs linked to depression and suicide in children - is diet an option?

A popular asthma medication called Montelukast or Singulair - commonly prescribed for children aged two to 14 with frequent intermittent, mild persistent or exercise-induced asthma - has been linked to cases of depression and suicide in children. Read the blog

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If you want things to change, contact the food manufacturer!

My adult daughter is affected by annatto 160b.  It makes her hyperactive and teary.  Blackmores had it in their B complex, and I rang their naturopath and pointed out that annatto affects hyperactive people and requested that they replace it. They did. It is worth contacting manufacturers if there is a product you want to use - Jenny.

Together we can change the world.

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Soy reviewed by Harvard School of Public Health

Soy has either a beneficial or neutral effect on various health conditions. Soy is a nutrient-dense source of protein that can safely be consumed several times a week, and is likely to provide health benefits - especially when eaten as an alternative to red and processed meat. Great list of up-to-date references. https://www.hsph.harvard.edu/nutritionsource/soy/ But note that some people can be intolerant to soy https://fedup.com.au/factsheets/additive-and-natural-chemical-factsheets/soy-lentil-and-other-legume-intolerance 

Foods are natural sources of substances that may exert crucial effects on the nervous system in humans

Some neurotransmitters in food are acetylcholine, glutamate and γ-aminobutyric acid (GABA), and the biogenic amines dopamine, serotonin (5-HT), and histamine. Using diet in neuropsychiatry suggested reviewing literature for these substances. Neurotransmitters can either be naturally present, as part of essential metabolic processes and ecological interactions, or derive from controlled/uncontrolled food technology processes and are found in animal foods, fruits, edible plants, roots, and botanicals. Ripening time, methods of preservation and cooking, and microbial activity all contributed to neurotransmitter levels. Moreover, gut microbiota are considerable sources. Data on neurotransmitter bioavailability, neuronal/non neuronal effects, or clinical implications are limited. Dietary Neurotransmitters: A Narrative Review on Current Knowledge. Matteo Briguglio, Bernardo Dell’Osso, Giancarlo Panzica, Antonio Malgaroli, Giuseppe Banfi, Carlotta Zanaboni Dina, Roberta Galentino, and Mauro Porta in Nutrients 2018 May; 10(5): 591. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5986471/

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Marion Nestle’s new book “Unsavoury truth: how food companies skew the science of what we eat” America's leading nutritionist exposes how the food industry corrupts scientific research for profit. This fascinating book starts with hacked emails from Coca Cola and works through the links between  food industry funding and nutrition messages that emerge from scientific studies.  I can’t help wondering whether it may be responsible for the recent decision by the Dietitians Association of Australia to sever links with industry sponsors https://www.amazon.com/Unsavory-Truth-Food-Companies-Science/dp/1541697111
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Q. I have recently been using Miso paste in my winter casseroles occasionally. The package states ingredients: water, soybeans, rice, salt, alcohol. Is the Miso powder safe? I have terrible insomnia with twitches, bad dreams when eating the wrong thing

A. Miso is definitely not OK!!! - It is listed as VERY HIGH (amines/glutamates) under Baking aids, herbs, spices & condiments on page 48, RPAH Elimination Diet Handbook. I agree with you that the ingredients look OK, but I the problem would be the fermentation process.  On the internet I found: "What is miso? It's a salty, savory, umami-rich Japanese fermented soybean paste". RPA says to avoid anything that has been fermented - and we say avoid anything described as umami. That's another word for MSG.  See more on this blog 129 ways to hide MSG                                                                                                                                                                                                                                                                  heading6successstories
You can scroll through the full text of all stories: for every story we report, there are probably another 10 that cover similar issues. And these are just the ones we get to hear about. Names have been changed to protect privacy.

Success story collections: organised by symptom or by additive keywords are proving the most popular downloads from the website. They'll be added to as time permits.

People tell us that stories are so useful and positive!

[1506] Amines: regarding chocolate – facebook thread (November 2018)

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My daughter reacts highly to chocolate. She has amine intolerance but I’m wondering what else could be there as her chocolate reactions (behaviour) seem more extreme than any other? - Ruth

There are different types of amines. My daughter seems to react to some types of amines more strongly than others - Tenille

I'm generally fine with amines in standard doses - I can eat aged meat, cheeses, etc. If I really splurge I'll react but it takes quite a lot, or I'm under stress or have my period (my threshold is lower all round then). However cocoa / chocolate and I do not mix. It causes anxiety in me at a minimum, and at a max full blown screaming raging melt downs. I cry screamed at my son once while reacting to a block of dark choc for getting water on the floor. It was the bathroom floor. He'd just got out of the bath. Totally irrational and really scary actually. I had no control. My son’s worst reaction is amines as well and the big sign is rage like he's possessed – Ali

Yes for me. Rage, aggression, anxiety, disturbed sleep – Ruth again

In a child it is one thing but as a 28yo adult it frightens me. It really made me have empathy for our kids rather than be mad at them. I went my entire life thinking I had no food issues, and just half assed this not wanting to cook multiple meals so ate what my son ate and wow I learned a lot about myself – Ali again

Omg! You are my kindred spirit! I’m exactly like that! Complete unnecessary rage... so awful! - Alison

Since having our food stuff more controlled, we are a happy, pretty calm family...Ali again

I’ll have to show this to my daughter. So she knows she is not the only one – Ruth finally

It can really help to make sense of it and feel like it's a legitimate thing, not some crazy madness all in your head! – Ali finally

Watch for added flavours. They are my girl’s chocolate trigger - she’s fine with pure chocolate- Tracy

I agree with others - the flavours can be the culprit too. Cadbury was the worst, my daughter passed the amines challenge with chocolate but she reacted very badly with Cadbury - Teresa

See more Amines factsheet

[1505] “The first miracle was being able to sleep again” (September 2018)

I have had asthma for nearly all of my life and in more recent years have also suffered with insomnia, an inflammatory-state throughout my body manifesting as fibromyalgia-type pain, loss of energy, rhinitis and head-pressure at times, to mention my main ailments.

I have tried reducing SAGs (salicylates, amines & glutamates) as well as food additives, having first come upon the book, 'Friendly Food', earlier this year and then coming across this website.

Potassium sorbate, propionate, annatto, soy lecithin, soy products like soy sauce, yeast extract products have all been excluded from my diet through eating only salted butter rather than margarine, having no ice cream, not even being able to use Easio starter yoghurt culture because it contains soy lecithin therefore requiring me to use my own yoghurt starter. I don't eat vegemite or any other yeast extract products and am lessening my fruit and some vegetable intake. Unfortunately, for quite some time I have had to eliminate honey, not to mention jams.

I have also excluded products like corned silverside and all hams, bacon etc. No cream cheeses. Now, I always make my own bread and several other food items. I have minimised coffee consumption from 1 cup a day to 1 cup a week and I may eliminate it altogether. I have gotten used to natural-flavoured cooking and like it. I now almost find food with soy and worcestershire sauce overbearing. Of course, stock cubes are never used now either.

I use plain water to clean my hair rather than using shampoo, which I will use very occasionally, not every day which has been my habit up until now. This is to alleviate the rash on my forehead.

After starting my low SAG, additive-free diet, the first miracle was being able to sleep again. I hardly need to take Ventolin anymore. My pain has left and I have far more energy. I wouldn't even consider trading my newfound better health for these high-chemical foods. I still have plenty of foods to choose from, especially if they are natural and not out of a package. Packaged foods include things like tea (I know, this is very high in salicylates-usually 1 per day), flour and rice.

Thanks so much to you and Howard for your very generous website with all its research, reader stories and information. You have helped me so much, along with Dr Anne Swain's books, '˜Friendly Food' and the '˜RPAH Elimination Diet Handbook' along with your own 'The Failsafe Cookbook'  - anonymous by email

[1504] Reactivity and the importance of adding foods back into diet (September 2018)

Thought I would let you know I am a lot better. Seeing RPAH Allergy Clinic directly made the difference and now I am having symptom free days. The key was the chart they gave me that showed how to add foods back in. That has made the difference. Every time my symptoms increased I had been going back to elimination and I was becoming more and more reactive. I started with 1/2 serve of amines (salmon or banana) every second day. Then introduced half a serve of sals once a week ... then I stuffed up and had to go back BUT NOT to the beginning (one step back) so you build up the base no matter how small it seems to be. I am now on 1/2 serve of moderate sals or amines each second day ... and I am so much better  The problem is with rushing ... you can't help it ... you end up further back but not at the beginning - Sheridan

[1503] Did diet work for ADHD? – facebook thread (September 2018)

Has anyone done the elimination diet for a child with ADHD, if so, did it work? Would love some advice/tips/help! - Tash

We are not ADHD but anxiety that presents as explosive rage. We have just finished week 2 of elimination and have 2 weeks to go but he definitely seems calmer and a little more controlled. He is himself sticking to it rigidly as he has noticed it is helping him feel like "his brain is racing less" - Kat

We have. We have found amines to be a huge trigger for poor emotional control. Food colouring exacerbates his hyperactivity. My 8 yr old also has autism - Renee

Yes, had huge results after first 2 weeks of going baseline. Concentration, focus, calmness. The boys dad thought I had sedated him. Strict elimination.MSG was huge problem - Tracy

Incredible results. Definitely recommend it - Verity

........read full story

ADHD factsheet

ADHD “a meaningless label” - or not? blog

[1502] Do you crave the foods that affect you? – facebook thread (September 2018)

For those who are eating without certain food chemicals - do you crave foods with those food chemicals that you are avoiding? I seem to crave intensely things that are high in amines and glutamates – Mel

In the beginning I had intense cravings. They went away – Gail

My child with behavioural/emotional symptoms craves his poisons. My child who only gets pain and physical symptoms does not crave his poison at all - Paula

Paula that makes total sense to me. I do not cheat on the foods that cause me painful reactions. But for emotional and behavioural  neither myself nor my son remember nor do we "feel" them as they "look" - the outward reaction does not feel like the reaction we are having – Gail again

Yes. I was theorising with my husband that I'm addicted to the immune response I get from these chemicals. Oddly enough all my favourite foods are reactive for me, so I wonder if this is something that happens to other people – Sarah

Yes, me too. My favourite foods are my poison and yes, I give in to cravings and wake up with what I call my food hangover which can last a few hours to days. I don’t however give in to sulphites and glutamates that give me week long migraines – Maxine

Mainly in the beginning or when I have broken the diet - Nat

Not cravings but I miss certain foods – Kat

Yes. And if I cheat a little bit my cravings intensify! The stricter I am the less I crave 💁🏻♀️ - Mel again

I know it seems like an addiction for my little man. He is ok if he avoids amines altogether, but he can’t handle just one taste of banana or cheese, etc, and gets angry or demanding wanting more -Mandy

For me salicylates increase appetite & create cravings - Chris

One of my amine side-effects is amine cravings. I have a few foods that I still miss, but as long as I am not seeing, smelling or tasting them I don't normally crave them. I've had to remove all amine foods from my house a few times. My husband isn't on the diet and usually I am ok as long as he is discreet, but when I am having withdrawals from amines all bets are off. Also amines affect my mood so that is probably part of it too. They can make me feel a bit high when I first eat them and then really low as they wear off. Glutamates are something I miss a lot too. I just really miss tasty food, but my reactions are so unpleasant that the temptation is usually not so much of a problem. If you can stick to the diet for long enough to do your challenges so you know what your symptoms are, you may find the temptation becomes less. – Shirley

I really struggled in the first year. I continually tried to add some (very) high foods back in for flavour till I finally realised that I felt much better without them. Now I can leave them no problem, knowing that I feel much better without them – Anne

[1501] Reactions of the fragrance-sensitive – facebook thread (September 2018)

Fragrances give me headaches - Lee

I get a headache the next day. Which is why I never figured out the cause before doing failsafe! - Ros

IBS, same reaction as eating a cream potato. Don't usually get a reaction if I've used the Azep spray - It took me ages to figure out! I spend a few hours one day a week at a place, after about 4 weeks I realised I reacted every time I went to that place and that's what I was reacting to rather than the FS food I ate for dinner each of those nights. Since I started taking the spray, I stopped reacting each day I go there - Jan

Forgot to comment about skin products. I use as FS as I can find. I use unscented everything. I couldn't figure out where a fragrance was coming from and it drove me nuts - the toilet paper roll was scented! - Jan

That is very interesting as my son certainly reacts to fragrance. I always thought it was just fairly immediate hyperactivity but it may explain some gut type reactions that he has where I cannot work out what the problem was - Rachel
Severe brain fog, anger, itchy sometimes, swollen face - often delayed as in I wake the next day with very puffy face, sore throat, anxiety etc - Teresa

Pains in my legs and hands and headaches/ pains in my head 😞 – Julie

Nasal congestion, headache, sneezing, watery eyes - could be others but sometimes hard to tell what has caused certain symptoms - Lisa

Migraines - Michelle

Headache, sore lips and tongue, fatigue, brain fog - Eli

Puffy face, blocked sinuses/head, hayfever type symptoms, difficulty breathing, hoarse voice, headache/migraine, sore eyes, brain fog / difficulty concentrating (and later remembering) – Kerry

Headache, brain fog, fatigue, dizziness, weakness, sometimes rashes - Rosemary

Duodenal/stomach pain, constant burping while exposed, light headed/dizzy, can't focus/think properly, puffy eyes, itchy throat – Ali

Headache, nausea and stuffy nose. Not sure if grumpiness is also a reaction. Maybe I’m just cross that I have to smell fragrance! - Linda

Instant headache - Heather

For those of you that get brain fog, migraine, head things from fragrance, try breathing through your mouth until you get away from offending smells. Works for my girl – Jean

Nausea, tinnitus, extreme tiredness, coughing, phlegm in the throat, sometimes chest constriction & pain – Sally

Burning sinuses, chest pains, asthma, brain fog, uncontrollable crying, depression, headaches - Jude

Instant headaches, my eyes start to twitch, sometimes they feel like they are rolling back in my head. Two of my daughters get very angry, it’s like instantly  - Kerin

Dizziness - Nicky

My brain stops thinking straight. E.g. I walked through a cloud of fragrance in a pharmacy one day and half an hour later in the supermarket I was standing there with my mind going round in circles thinking 'I know there's something else' repeatedly. I had to just pay for what I already had and walk out. It increases my fatigue also - Kathy

Neck ache, headache, eye twitch, feels like constricting blood vessels or something moving in my head, lack of focus, mood change, then fatigue - Irene

It starts with burning eyes, then red, burning hands, then burning inside my mouth, aching all over, brain fog, headache, then progresses to nausea & on occasion vomiting - Sharyn

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Factsheet on fumes and perfumes
Factsheet on perfumes and fragrances 
Factsheet on inhaled salicylates
7 hints for fragrance-sensitivity blog
Chemical sensitivity increasing blog

[1500] More on dealing with hubbies and inlaws – facebook thread (September 2018)

I need to rant... I’m defeated without even starting. My 6 y/o was diagnosed with adhd, anxiety and sensory issues just over 2 weeks ago. Since then I have been researching and getting together recipes to start next week, as per our paediatrician recommendation. My husband, the school and his GP don’t believe this will made an ounce of difference so we are going to medicate and do the diet at the same time. (There’s lots of eye rolls and smirks involved when changing his food is mentioned). Every time my husband talks about this it’s always I want to do it (not we), he has already decided that he won’t eat the meals unless he absolutely has to (dinners only) and there’s no reason for us all to do it, when it’s only for our son. He makes comments like now our son can’t go to parties and now his sister misses out on all the yummy foods, he won’t get enough nutrients etc. he’s already said that it’s on me to make sure we stay on the diet and he eats properly. I understand and agree with medication because he is really struggling at school and it breaks my heart that he is constantly in trouble, so if the medication helps him get through a school day that’s great, but I would like a bit of support in trying this. We have not told any family about his diagnosis as we don’t want their opinions on what we should do, so I am literally doing this alone - end rant! – Sam

.....read full story (lots of supportive ideas!)

[1499] Dealing with the grandparents, inlaws, hubbies – facebook thread (September 2018)

Every time I catch up with my parents they go on about how much this diet is depressing them and they can't wait till it's all over. It's really wearing me down. I'm trying to pack meals when I go there as they watch the kids when I work once a week, but they keep getting stuck with snacks and kids saying they're hungry - any advice to get through this? – J

.....read full story (lots of supportive ideas!)

[1498] ”That could have been my son ... food aversions, ADHD symptoms, climbing, SPD...” (August 2018)

That could have been my son you were talking about in story [1497]. The food aversions, ADHD symptoms, climbing, Sensory Processing Disorder (SPD) etc. I took EVERYTHING out of the house and went super strict and said he could have anything he wanted any time he wanted, and that really helped. To be honest he lived on white rice and crackers for days. After the withdrawals, he blew me away and was willing to eat things like never before. I went DF and GF as well but didn't actually think he would react to them. BOTH were huge issues. Dairy was sleep issues and severe sensory problems. Gluten severe constipation and oppositional defiance. He had negative serology for coeliac disease (CD) but presents with symptoms, and just 2 weeks ago his grandmother was accidentally diagnosed with CD via scope for something totally unrelated so family history is there. Amines were our biggest problem by far. There is light at the end of the rainbow, though. We did this over 18 months ago and he (although diagnosed ASD / SPD) is SO functional and thriving, and tolerating more and more by the week. He pretty much eats as we eat now, although additives and gluten will be a forever no no for us – Ash

[1497] “My first son was like a eczema-covered cyclone” (August 2018)

I first brought Fed Up in 1999, it changed our lives! My first son was like a eczema-covered cyclone, he was looking like being medicated for adhd as a toddler. Within months of starting the elimination diet and realizing he was extremely reactive to food chemicals I had a different kid, one that could concentrate. Although we had lots of time in the principal’s office in his early primary years he excelled in school and went on to be student counsellor and was chosen for the MAPS course, his future is bright!

I am now a mother of a second child who is nearly 2 and we find ourselves in a similar situation but with sensory issues too. I have basically Dengated most kids that come into my house and avoid preservatives and additives like the plague, but am struggling with this lil guy as he has unknown allergies, breathing issues, food refusal/aversion, dysphagia, aspiration with solids and liquids and is suspected of OA/TOF (waiting assessment for bronchoscopy). He will only eat a few foods and is on only puree's for aspiration now. He has feeding clinic on Monday so I'm updating my knowledge of failsafe/dengate in the hope the dietician can be mindful that this worked for my sons extreme activity and hopefully can help my lil guy now. Just wanted to say a big THANK U to Sue for sharing her knowledge all these years and how she has changed so many families lives for the better, we are definitely one of them xxxx – Jo

[1496] 202: Reaction to potassium sorbate preservative in Panamax (August 2018)

I have had hives for 10 weeks. Following a strict failsafe diet, hives were down to 5-10 daily, no itch, then had two panadol for a headache before bed. Bam! 60+ red itchy weals in the morning. Hadn't checked the panamax packet ... checked: potassium sorbate (preservative 202) – Alicia

[1495] Massive improvement in sons' behaviours (July 2018)

We've been doing this diet for 3 months now and I'm amazed to see a massive improvement in both my sons' behaviours. My 4yr old was displaying ADHD and "gifted" bad behaviour at home and school, and has since been more cooperative, better listening and "toned" down a number of notches, he likes the food. My 2 yr old has finally slept for 8hrs straight at night, for a week in a row, he has never slept that long in his life! I suspect salicylates (I used to give them juice, tomatoes and dried fruit every day) and too many amines (lots of cheese). I'm not keen to do the challenges for salicylates, our life is so pleasant this way now :) It is hard to explain to people how this makes so big a difference, but it works for us! Thanks for your books and resources about this, I'm recommending it to my friends and sisters! – Rachel (from 2010)

[1494] One-liners (July 2018)

I just had a Skype consult with one of your recommended dieticians and she was awesome. Your support has been invaluable – reader

School principal took me aside and said how amazingly well my son is doing and that whatever I am doing to keep it up because it’s working. Can’t wait for next term’s success – Megan

This is a great article. Love seeing the real life testimonies. The brochure is such a great resource. I came across it years ago and have never looked back. I now educate many on the harmful additives this brochure lists. Many lives are being changed by this information. Thank you!

Thanks for being there for those who were in the dark struggling in the early years - you & Sue were a god-send and helped so many. Thank you so very much for your dedication - Maggie

Don’t forget, you can search for stories/symptoms or scroll through all current stories

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Feedback on LYS (liberate your skin) moisturiser https://liberateyourskin.com.au – formulated by a paediatric allergist and an experienced compounding pharmacist (coconut oil, glycerol, white soft paraffin, emulsifying wax, water. No preservatives, perfumes, soaps or parabens). Expensive at $46.75 including shipping for 500ml in a dispenser bottle but effective!

Other than being fragrance free, I did not have any expectations of this product. The first night I used it on a patch of dry skin and was surprised at the quick improvement. Two weeks later, I am most impressed - LYS moisturiser is very effective, feels good to use and makes my skin look fresh and healthy. Highly recommended - Sue

Finally a skin care product that felt like a moisturiser without any nasty ingredients.  I liked that it wasn’t overly powerful smelling of coconut as I’m not a fan but I did find I did break out. Not sure if that’s hormonal though as just had a baby 5 months ago - Jan

I found a little bit greasy at first, but it was very light on my skin once it was rubbed in. Where I had dry patches they seemed to recover fast, especially if I used it several times a day. It is better than the sorbolene I am using currently, in this regard. I had none of the flare-up that I have after many supposedly suitable emollients, which I believe I can attribute to certain preservatives found in many of them. I addition, when I applied it to skin with weeping patches or the little bubbles I sometimes get, there was no stinging or burning either. I would certainly buy it if it was in my price range – Sharon

I found it a little thicker than I’d expected, almost like a salve, but as soon as it hit the skin it softened and was very easy to apply. It rubs in nicely and doesn’t leave a greasy or sticky residue. I found it very moisturising, even on hard skin like elbows. I didn’t detect any fragrance and I don’t believe I had any kind of adverse reaction. It’s definitely something I’d buy – Jane

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Factsheets provide science-based access to information on added and natural chemicals, on symptoms and support. See full list of over 100 factsheets and remember that you can use the search function to search all factsheets (Information>Factsheets>Search all factsheets)

Don't forget that there is great collection of short videos to help answer your questions and understand food intolerance.

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Thanks for your continuing support of each other!

A video-graphic introduction to food intolerance from one of our Network members (2 mins): Food intolerances, what are they? Thanks to Steph Aromataris www.stepharomataris.com

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Diet not working as well as you'd hoped? One tiny mistake can make a huge difference. For fine-tuning, see the Checklist of common mistakes. Readers tell us this list is very useful. You can also ask for our Salicylate, Amine and Glutamate mistakes sheets This email address is being protected from spambots. You need JavaScript enabled to view it..

Online support: Sue Dengate facebook group (14,600 members, open forum meaning the public can see your posts). If you want to use an email support group, join at This email address is being protected from spambots. You need JavaScript enabled to view it.. All other Yahoo groups have been closed because facebook has become the support choice of members.

Closed failsafe group https://www.facebook.com/groups/352777968116759/ 
USA facebook group https://www.facebook.com/groups/284241571702972/
NZ facebook group https://www.facebook.com/groups/1011400158967643/ (membership preference given to those living in New Zealand)
UK facebook group https://www.facebook.com/groups/380347182034474/ again accessible

twitter-bird-blue-on-whitetweet as @failsafers (note the plural).

Food Intolerance Network hit 11 million visitors in April 2018. Interest in food intolerance and in eating food without additives continues to grow.

Local contacts: can generally answer some questions about failsafe eating - many have brochures and a copy of the DVD to lend out. They can also advise on supportive dietitians locally.

Dietitians: for failsafe-friendly dietitians, see the regularly updated
http://fedup.com.au/information/support/dietitians There is no longer any need to email This email address is being protected from spambots. You need JavaScript enabled to view it. for this list.

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DVD "Fed Up with Children’s Behaviour” has subtitles in six languages. (In PAL format only, not available with subtitles in NTSC format. But NTSC format DVDs are at a reduced price of only $15.50 through www.fedup.com.au)

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Brochures
: are available in many languages
in a printer-friendly format (thanks to Failsafe members for translating!). Email This email address is being protected from spambots. You need JavaScript enabled to view it. if you can help with other languages. Brochure in Chinese. Latest brochure in Finnish.

Newsletters:
All Failsafe Newsletters can be searched and printed. There is a wealth of research, issue discussion, recipes, personal reports and recipes now available in one place. But some of the links are out of date and you must always check current products rather than relying on historical information.

Success story collections: These are the most popular downloads from the website,
organised by symptom and by additive.

The Food Intolerance Network strongly supports the peer-reviewed publication of evidence regarding the effects of salicylates on health, behaviour and learning and acknowledges that more research needs to be published, particularly using dietary salicylates. However the very foundation of science is observation and these observations over many years show an astonishing and convincing range of real symptoms. We hope that they may assist in stimulating further research publication.

Reintroduction guidelines: for people who are extra sensitive, the new RPAH reintroduction guidelines recommend much smaller servings of salicylate and amine containing foods than previously, see reader comment below. Available on request from
This email address is being protected from spambots. You need JavaScript enabled to view it.

Thank you so much for the new RPAH reintroduction recommendations. I now understand why when I tried to ascertain my tolerance levels and did as my dietician recommended (try 1/2 a cup of salicylates) that my symptoms returned very quickly. ½ a cup is 100 times ¼ of a teaspoon, and given my scent problems I’m probably highly sensitive. Now I can try again. - failsafer, NZ

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A great list of recipes at http://www.fedup.com.au/recipes/blog

You really can't do better than to get the regular newsletter from The Failsafe Table

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There's a recipe index of ANY Failsafe recipes on ANY blog. So far there are more than 1,000 recipes with great photos and ideas all categorised to make it easy to search  http://pinterest.com/failsafetable/ 

Failsafe Thermomix group with recipes and a place to ask questions etc https://www.facebook.com/groups/139914166142279/

I bought a Thermomix a couple of months ago, and absolutely love it. These machines are totally awesome, so pure and clean, and I truly believe that if we’d had a Thermomix years ago when our son was at his worst, it would have saved us a lot of heartache, as well as time and money - Susan.

And the very useful weekly meal plan website https://mealsplans.wordpress.com/
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Privacy statement about emails and reports: Your email addresses and stories are never shared with anyone without your express permission. Names in stories are often changed to better protect the privacy of those providing them but the original emails are held in a secure location to provide evidence that these are real reports and that express permission to share them has been granted.

The FAILSAFE Newsletter is available free by email. Just email This email address is being protected from spambots. You need JavaScript enabled to view it.. Unsubscribe by sending a blank message to This email address is being protected from spambots. You need JavaScript enabled to view it. or use the unsubscribe button if your newsletter comes from MailChimp.

Sue Dengate’s books and DVD and the failsafe magnifying card and sulphite test strips are available through www.fedup.com.au

Special offer for USA and Canada: Random House has taken over distribution of Sue's books in the USA and Canada, but our current warehouse in upstate New York continues to offer special prices until all gone: Go to http://www.bookch.com and search for "Sue Dengate"

24 copies Fed Up Revised and updated at $12.50
10 copies Failsafe Cookbook Updated at $22.00
11 copies Fed Up With Children' Behaviour (NTSC format) - DVD at $15.50

Fed Up and the Failsafe Cookbook are now available as an ebook: www.amazon.com for Kindle, www.dymocks.com.au in ePub version suitable for Tablet PCs, PCs, Macs, Laptops, www.ebooks.com in ePub for digital and iPhone/iPad.

Sue Dengate’s personal story as an ebook only $3.99: Fed Up with Food Intolerance - a personal story 

"Of all your books, your ebook Fed Up with Food Intolerance is my favourite ­ I just couldn’t put it down" - from Fed Up Roadshow 2015

Look inside

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This is the story that helped thousands of parents and adults understand this baffling disorder.

Buy direct at http://fedup.com.au/order-books/sue-dengate-books-dvd-magnifying-cards-test-strips/fed-up-with-food-intolerance-ebook.
Download a sample for Kindle (.mobi) or for other ereaders (.epub).
Also available through Amazon for Kindle

Disclaimer: the information given is not intended as medical advice. Always consult with your doctor for possible underlying illness. Before beginning dietary investigation, consult a dietician with an interest in food intolerance. Information is drawn from the scientific literature, web research, group members and personal enquiry; while all care is taken, information is not warranted as accurate and the Food Intolerance Network and Sue Dengate cannot be held liable for any errors or omissions.

© Sue Dengate 2018 (text) PO Box 718 WOOLGOOLGA NSW 2456, Australia but material can be reproduced with acknowledgement. Thanks to the many members who have written, phoned and contributed to this newsletter and particularly to Teresa and Tracy for their help with facebook and story collections. Further reading and viewing: Fed Up and The Failsafe Cookbook by Sue Dengate (Random House Australia), Fed Up with Children’s Behaviour (DVD) by Sue Dengate.